Our Angle With Out Wings XoXo
- All you need is L.O.V.E
- Hey! Im Ashley and I live in the Washington area. God has blessed me with three beautiful children. One of my children has a rare form of dwarfism. We are still waiting on a dignosis, which can take up to a year. So while i patiently wait ive been doing a TON of research on could it be this or oh what if she has that...I have this blog to have others find me and as well helping others who may be experiencing the same issue's or have already been there. Enjoy to read or even chat & of course enjoy our wonderful journey that God has planed for us :D
Wednesday, June 27, 2012
Cant Believe Riley Is 3 Months!!!
Its that time again for another update!
Last friday miss riley kept spitting up more of her formula. I thought maybe it was her reflux med's so i called her ent doc and she said it sounded like she was coming down with another virus, and have her be seen by her pcp. But i thought i would wait it out over the weekend and see how she does. Since i had a shriners apt that afternoon and it took longer then expected. Sunday comes along and she was up all night the night before and riley sleeps through the night and she was real fussy so i knew then that something was wrong. So i take her to urgent care that sunday morning for them to tell me they cant help me and it would be better to take her over to ohsu, but ohsu doesnt have a urgent care so i took her to the er. was there for 30 min for them to tell me nothing is wrong and have her psp look at her on Monday. Sunday night come's and I see some fluid coming out of Riley's ear. so i wiped it out and as i did it had a weird smell. funky smell. First thought was ear infection. took her in Monday morning and guess what she did!!! Then what made me mad was while he was gonna leave the room to write up the med form he wasnt even gonna check the other ear. I had to ask him too. How come some of these doctors just want you in and out of there office? It pisses me off. I have to find out what the hell is wrong with my daughter when these people go to school for years and dont even want to take the time to figure out if there is anything wrong. Its just frustrating sometimes.
Shriners update!
I think this will be Rileys last casting!!! They fitted her for a splint!!! It should be ready in two weeks! Her legs are looking awesome! Her ortho is shocked!!! YAY Riley!!!
Her Nose Trumpit is working very well too!!! They want to do another sleep study to see how well she does with out it and that will tell us if she needs it for only night time ect. so im kinda excited for that! she still isnt doing well on her feeds today i tried bottle feeds and she took 50ml the first time but the second time she only took 10ml...they think they might wanna put a g tube in if she doesnt start getting better. hope not but if this will be better for her then guess we should do it...
well better get going miss riley is makin noises
2 Months
3 Months
love you all xoxo
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1 comment:
What a beauty! A true angel! Xoxo
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