Our Angle With Out Wings XoXo
- All you need is L.O.V.E
- Hey! Im Ashley and I live in the Washington area. God has blessed me with three beautiful children. One of my children has a rare form of dwarfism. We are still waiting on a dignosis, which can take up to a year. So while i patiently wait ive been doing a TON of research on could it be this or oh what if she has that...I have this blog to have others find me and as well helping others who may be experiencing the same issue's or have already been there. Enjoy to read or even chat & of course enjoy our wonderful journey that God has planed for us :D
Thursday, April 26, 2012
Shriners Apointment Update
So went to Shriners to get a new cast on riley and a new splint. The doctor said her knees are doing what he wants. which is bending. YAY...Im soo happy. He even said the left leg which is the really bad leg, is doing what he wants to do..and he is shocked!
Got a call from the sleep study doctor and he seems to think Riley has sever sleep apena which i think is bullshit. That was the worst 8 hours of my life! she was up every 15 to 20 min bawling. She is never that upset and she usually sleeps for a good 3-5 hours. We have a sleep monitor..so when ever she stops breathing it will go off. We have never had a problem with it. So the sleep doc wants to put her on oxygen at night. only at night. doesn't make since to me. she is a baby. all she does is sleep. so what is the difference at night to during the day? He made me really upset. My daughter dont need to be on oxygen and doing a sleep study on a one month old is crazy!
besides that Riley is growing like a weed! and is doing really good on her eating. Starting to turn into a chub haha...
Thats all the updates i got today love ya all xoxo
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment